A trainee's reflections on S3E9 (Co-Creating Care: Embedding Family Voices in the Pain Pathway Project

In this episode of asPERusual, host Anna Chudyk speaks with Dr. Sharon Hou (psychologist and assistant professor at Simon Fraser University) and Laesa Kim (parent partner, and family liaison at BC Children’s Hospital Research Institute)about their work on the Pain Pathway Project, a CHILD-BRIGHT–funded initiative supporting community pediatricians in managing pain and irritability among children with severe neurological impairments. Together, they explore how embedding family voices from the start transforms research design and implementation, and how trust, co-creation, and reflective collaboration make both research and care more compassionate, accessible, and effective.

In this episode of asPERusual, host Anna Chudyk speaks with Sara Pot(family partner with lived/living experience) and Alicia Hilderley (clinical-trials researcher) about their shared Patient & Family Engagement Facilitator role at RareKids-CAN, Canada’s pediatric rare disease clinical trials and treatment network. Together, they unpack how pairing lived/living and research experience moves teams beyond advisory panels into embedded partnership, and how trust, safety, and thoughtful design shift power dynamics in the day-to-day.

In this follow-up conversation with knowledge broker and bereaved parent-advocate Rae Martens (Family Engagement in Research Program/ Kids Brain Health Network / Can Child Center for Childhood Disability Research), we move from principles to practice: how to create developmentally appropriate, emotionally safe, and genuinely collaborative research partnerships with children, youth, and families.