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  <url>
    <loc>https://www.patientengagementinresearch.ca/how-to-engage</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-06-04</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/how-to-engage/future-directions-for-patient-engagement</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>How to Engage - What is Engagement? - Patient and Care Partners’ Perspectives on Engagement</image:title>
      <image:caption>Article full title: Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study Study aims: To explore patient partners’ motivations for engagement and understanding of their role. What we did: We interviewed 13 patient partners about their motivations for engagement and understanding of their roles. Themes were generated from the interview response to meet the study aims. What we found: Sharing the lived patient and caregiver experience was central to how most patient partners defined their role and its purpose, value, and responsibilities. We also identified four other categories of motivations for becoming a patient partner and other contributions that patient partners make to research. Finally, interviews highlighted different types of meanings that could be attached to the title of “patient partner.” Based on our findings, it is very important that academic researchers and patient partners take the time to discuss and understand each other’s underlying motivations for partnering and their thoughts on the purpose, value, and responsibilities of the patient partner role.</image:caption>
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      <image:title>How to Engage - What is Engagement? - Future Directions for Patient Engagement</image:title>
      <image:caption>Article full title: Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers Study aims: To identify future directions for Canadian patient engagement in research and discusses its findings in the context of the international literature. What we did: A multi-meeting pan-Canadian virtual workshop. Thirty participants attended four, 1.5–3h virtual meetings. Participants discussed the current and preferred future states of Canadian patient engagement in research. Themes were generated from conversations that occurred in the workshop. What we found: 10 target areas for improving Canadian patient engagement in research (systemic integration; academic culture; engagement networks; funding models; compensation models; engagement processes; awareness; diversity and recruitment; training, tools and education; evaluation and impact).</image:caption>
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      <image:title>How to Engage - What is Engagement? - Protocol for a scoping review of patient engagement in pharmacy practice research</image:title>
      <image:caption>Study aims: This study presents our plan for a large, structured review of published and unpublished research to better understand how patient engagement is being used in pharmacy practice research. The review will examine how patients are engaged throughout different stages of research, how engagement is described in research studies, and how researchers assess the quality and impact of engagement. What we did: This paper describes the plan for the review rather than completed research findings. This review will provide a clearer picture of how patients and caregivers are being engaged as partners in pharmacy practice research. This includes identifying relevant studies, collecting key information from them, and examining how patients are engaged throughout different stages of the research process, such as study design, conducting the research, and evaluating findings. Expected contribution: This review will provide a clearer picture of how patients and caregivers are being engaged in pharmacy practice research. It will also help identify gaps and inconsistencies in how engagement is described and evaluated across studies, which may help guide future efforts to strengthen meaningful patient engagement in pharmacy research.</image:caption>
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      <image:title>How to Engage - What is Engagement? - Models and Frameworks of Patient Engagement</image:title>
      <image:caption>Article full title: Scoping review of models and frameworks of patient engagement in health services research Study aims: To count and describe the elements that overlap and diverge between models and frameworks of patient engagement in health services research. Our specific research question was ‘what are the elements that underlie models and frameworks of patient engagement in health services research?’ What we did: We conducted a scoping review of six electronic databases. We included published and unpublished literature that presented (a) models or frameworks (b) of patient engagement (c) in health services research. What we found: We included 14 models and frameworks. These models and frameworks had 18 overlapping and 57 diverging elements, that were organized into six conceptual categories (ie, principles, foundational components, contexts, actions, levels and outcomes) and spanned intrapersonal, interpersonal, process, environmental, and health systems and outcomes domains. Because there is little overlap between models and frameworks, researchers should consider the ‘fit’ of each element, by conceptual category and domain, within the context of their study.</image:caption>
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      <image:title>How to Engage - What is Engagement? - Patient Engagement in Scoping Reviews</image:title>
      <image:caption>Article full title: Protocol for a scoping review to map patient engagement in scoping reviews Study aims: To describe the protocol of a scoping review which will examine how patients and caregivers have been engaged as part of past scoping reviews, and inform the development of a unifying methodology. What we did: We have developed a protocol for a scoping review of methods used to engage patients and caregivers in scoping reviews of health research. Two patients will be engaged as collaborators throughout this review. We will also consult with patients, caregivers, and researchers upon completion of preliminary analyses. Expected outcomes: We anticipate that our scoping review will provide guidance for researchers seeking to involve health care stakeholders as co-producers of scoping reviews.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/how-to-engage/education-training-and-capacity-building</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/ba7ede0a-5c43-44b2-a138-0ef9455ba0e9/Image+test+6.png</image:loc>
      <image:title>How to Engage - What Makes Engagement Successful? - Patient and Caregiver Perceptions of Facilitators and Barriers to Engagement</image:title>
      <image:caption>Article full title: Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study Study aims: To better understand what helps patients and caregivers feel meaningfully engaged as partners in health research, and what gets in the way of this meaningful engagement. What we did: A patient partner and researcher jointly interviewed 13 patients and caregivers from across Canada about their experiences partnering on health research projects. After the interviews were completed, a separate group of 8 patient and caregiver partners worked alongside the research team to help review and interpret the interview findings. Together, they identified the most important ideas and patterns that emerged from the interviews. This helped ensure that the study findings truly reflected patient and caregiver partner perspectives and experiences around what supports meaningful engagement and what makes it more difficult. What we found: Meaningful engagement was strongest when patients and caregivers understood their role, felt respected and psychologically safe, and could see that their input was genuinely shaping the research. Support, training, and clear communication were also identified as important for creating positive research partnerships. When these things were missing, patients and caregivers often felt overlooked, uncertain about their role, or included only “for show” rather than as true partners. The study also provides practical recommendations to help researchers build more meaningful and respectful partnerships with patients and caregivers.</image:caption>
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      <image:title>How to Engage - What Makes Engagement Successful? - Teaching Patient Engagement in Research</image:title>
      <image:caption>Article full title: Higher education curricula and approaches to patient engagement in research: A case study Study aims: To explore how patient engagement in research can be taught within university or college courses, and how this education can better prepare students, patients, and caregivers to work together as research partners. What we did: This paper describes a graduate university course focused on teaching patient engagement in research. Patients, caregivers, students, and educators who were also researchers worked together to help shape what was taught and how it was taught. The goal was to create training that helps people better understand how to work together respectfully and meaningfully in research partnerships. What we found: A university course focused on patient engagement helped strengthen students’ understanding of how to engage patients and caregivers as partners in research and how to conduct research that reflects patient and caregiver priorities and perspectives. The course also supported more meaningful collaboration between students, researchers, patients, and caregivers. In addition, the study showed that involving patients and caregivers in shaping course content and teaching approaches can improve how patient engagement is taught and help build the skills and attitudes needed for true partnership-based research.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/how-to-engage/arts-based-methods-for-engagement</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>How to Engage - Engagement Tools and Techniques (How-Tos) - Activities and Impacts of Patient Engagement</image:title>
      <image:caption>Article full title: Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences Study aims: To describe engagement activities and perceived impacts of projects funded by the Strategy for Patient-Oriented Research (SPOR). What we did: We surveyed 66 academic researchers and 20 patient partners who were involved in research projects across 13 SPOR funding calls (2014–2019).  Thematic analysis was used to describe engagement activities and impacts. What we found: Patient partners were engaged in seven types of activities across the research cycle: (a) sharing experiences/giving advice, (b) identifying the research focus/methods, (c) developing/revising aspects of the project, (d) conducting research activities, (e) study participation, (f ) presenting on behalf of the project, and (g) other grant development or knowledge translation activities. Engagement was associated with six different types of impacts related to knowledge, outputs, or directions being (a) created, (b) moulded, (c) confirmed, or (d) chosen/prioritized, (e) perceived success of the research, and (f) minimal/negative impacts on the research.</image:caption>
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      <image:title>How to Engage - Engagement Tools and Techniques (How-Tos) - Participatory Member Checking</image:title>
      <image:caption>Article full title: Participatory member checking: A novel approach for engaging participants in co-creating qualitative findings Key concepts: Member checking is a process where research participants are invited to review and provide feedback on researchers’ early interpretations of interview or focus group findings to help ensure the results accurately reflect their experiences and perspectives. Study aims: This study developed and tested a new approach called Participatory Member Checking, designed to involve research participants more actively in the member checking process. What we did: This study was part of a larger research project that involved patient partners who had previously participated in interviews about their experiences with patient engagement in research. After the research team completed an initial analysis of the interviews, participants were invited to take part in a Participatory Member Checking process developed as part of this study. Participants reviewed draft themes and supporting quotes from the interviews, shared written feedback, and took part in group and individual discussions to help clarify, refine, and strengthen the findings. The research team then used this feedback to revise the analysis. Participants were also shown how their feedback was incorporated into the final findings. What we found: Participatory Member Checking led to important improvements in the research findings. Through this process, participants’ feedback helped identify ideas that had been missed, clarify and strengthen key themes, and ensure the findings more accurately reflected participants’ real experiences and perspectives. The process also brought forward additional insights and details that were not fully captured in the research team’s initial analysis. Overall, participants were highly engaged in the Participatory Member Checking process, and their involvement helped strengthen the quality and accuracy of the final findings.</image:caption>
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      <image:title>How to Engage - Engagement Tools and Techniques (How-Tos) - CALM Hearts Engagement and Optimization</image:title>
      <image:caption>Article full title: Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities Key concepts: CALM Hearts: A physical activity programme for women at risk of heart disease that teaches self-compassion as a way to support health behaviour change. Patient and community engagement: Partnering with patients, caregivers, and community organizations on research projects, so their perspectives help shape research decisions and directions. Optimization: Improving an existing program before testing how well it works and preparing it for real-world delivery. Study aims: This paper had two aims. First, it describes how patient and community partners helped shape a grant proposal to improve the CALM Hearts programme. Second, it presents a plan for how patient and community partners will continue to be engaged as CALM Hearts is improved, tested, and prepared for future delivery in community settings. What we did: CALM Hearts had already been developed and tested with a small group of participants. In this study, we worked with four patient partners and three community partners to identify what should be improved before the programme is tested in a larger study and prepared for delivery in community settings. Patient and community partners helped establish shared expectations for working together, identify priority areas for improvement, and co-develop a detailed engagement plan for future stages of the project. Uniquely, the paper also presents and explains this engagement plan to help other researchers think through how to meaningfully engage patients and community partners when improving health programmes for real-world use. What we found: Patient and community partners helped identify several ways to improve CALM Hearts, including delivering the programme in small groups, adding a follow-up booster session, and involving community staff in future training and delivery. The study shows how engaging patients and community organizations can help make an existing health programme more practical, relevant, and ready for future testing and community use.</image:caption>
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      <image:title>How to Engage - Engagement Tools and Techniques (How-Tos) - Engaging and Care Partners in Data Analysis and Synthesis</image:title>
      <image:caption>Article full title: A virtual, multi-session workshop model for integrating patient and public perspectives in research analysis and interpretation Study aims: To provide a virtual workshop model for integrating patient and public stakeholder perspectives in data analysis and interpretation. What we did: Our model involves four virtual workshop sessions held on separate days, each achieving the unique goals of (a) establishing participants’ technological literacy within the virtual platform, (b) obtaining responses to the research question, (c) introducing participant perspectives into research analysis and interpretation, and (d) prioritizing research findings or future research agendas. What we found: This paper contributes toward a toolkit for patient engagement in research. Our model could be applied in research areas where there is currently minimal patient engagement. We also provide a practical approach to engaging with patients virtually, with a specific discussion of equity, diversity, and inclusion.</image:caption>
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      <image:title>How to Engage - Engagement Tools and Techniques (How-Tos) - Arts-Based Methods in Research</image:title>
      <image:caption>Article full title: The use of arts‐based methods to enhance patient engagement in health research Key concept: Arts-based methods: Research approaches that use artistic activities — such as storytelling, photography, drawing, visual arts, or performance — to help people express and communicate their experiences in different ways. Study aims: To better understand how creative and arts-based activities are being used in patient engagement in research, and how these approaches may help patients and care partners share their experiences and perspectives. What we did: We conducted a review of published research studies that used arts-based methods to engage patients and caregivers as partners in research. We searched multiple academic databases to identify relevant studies and examined how different arts-based approaches were used in research settings. In total, 15 studies were included in the review. What we found: The studies used many different arts-based methods and often combined multiple creative approaches. Overall, these methods appeared to support patient engagement by giving participants more flexible and meaningful ways to share their lived experiences than traditional research methods alone. Arts-based methods also helped people communicate complex or emotional experiences and support deeper engagement in the research process. However, studies often described their methods and findings differently, making it difficult to compare results across studies.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/engagement-in-practice</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-06-04</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/engagement-in-practice/cardiac-surgery</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>Engagement in Practice - Cardiac Surgery - Patient and Caregiver Priorities in Cardiac Surgery Outcomes</image:title>
      <image:caption>Article full title: Patient and caregiver preferences and prioritized outcomes for cardiac surgery: a scoping review and consultation workshop Study aims: to identify patient and caregiver preferences and prioritized outcomes related to peri-operative care in cardiac surgery and its lifelong impact. What we did: We conducted a scoping review of five electronic databases. We included 43 studies that investigated patient or caregiver preferences and prioritized outcomes. Findings were summarized using descriptive statistics and a thematic analysis. Ten patients and seven caregivers were involved in a consultation workshop to validate or add to the findings.  What we found: Based on the collective preferences of 3772 patients and caregivers from the review and 17 from the consultation workshop, a total of 108 patient preferences, 32 caregiver preferences, and 19 prioritized outcomes were identified. Patient and caregiver preferences overlap with the current recommended strategies to reduce risk and improve recovery among cardiac surgery patients.</image:caption>
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      <image:title>Engagement in Practice - Cardiac Surgery - Putting Patient Value First in Cardiac Surgery Care</image:title>
      <image:caption>Article full title: Putting patient value first: Using a modified nominal group technique for the implementation of enhanced recovery after cardiac surgery recommendations Study aims: To explore, from a patient and caregiver perspective, the priority of implementing the Enhanced Recovery After Cardiac Surgery (ERAS-CS) guidelines to optimize the care of patients undergoing cardiac surgery. What we did: Five patients who had undergone cardiac surgery and two caregivers ranked ERAS-CS recommendations within 3 time points (pre-operative, intra-operative, and post-operative) and across 2 to 3 voting rounds. Final round rankings were used to determine relative priorities. What we found: Patient engagement tools, surgical site infection reduction, and postoperative systematic delirium screening were the top-ranked ERAS-CS recommendations in the pre-operative, intra-operative, and post-operative time points, respectively. Exploring patient and caregiver priorities may provide important insights to guide the healthcare team with developing and implementing clinical pathways.</image:caption>
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      <image:title>Engagement in Practice - Cardiac Surgery - Patient Engagement in Mobile Health App Design for Cardiac Surgery</image:title>
      <image:caption>Article full title: Patient Engagement in the Design of a Mobile Health App That Supports Enhanced Recovery Protocols for Cardiac Surgery: Development Study Key concept: Mobile health technology: Health-related apps, tools, or support delivered through mobile devices such as smartphones or tablets. Study aims: To better understand how involving patients and caregivers in the design process could help improve a mobile health technology (app) designed to support recovery after cardiac surgery. What we did: We worked with an advisory panel made up of patients and caregivers of patients who had undergone cardiac surgery at our research hospital. Through a series of discussions, advisory panel members shared their ideas about what information, features, and supports would be most helpful during recovery after surgery. The research team reviewed these discussions to identify common priorities and recommendations. What we found: Patients and caregivers highlighted the importance of clear, easy-to-use features and information within the mobile health technology. They identified needs such as recovery tracking, reminders, and accessible information about physical activity, medications, symptoms, and recovery expectations after surgery. Their feedback directly shaped the design of the tool wherever possible within the limits of the technology platform. Overall, involving patients and caregivers helped ensure the tool better reflected real-world recovery experiences and user needs.</image:caption>
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      <image:title>Engagement in Practice - Cardiac Surgery - Patient Experience With a Cardiac Surgery Mobile App</image:title>
      <image:caption>Article full title: Use of a mobile health application by adult non-congenital cardiac surgery patients: a feasibility study  Study aims: To evaluate the feasibility (compliance, usability and user satisfaction) of a mobile health app for delivering Enhanced Recovery Protocols to cardiac surgery patients peri-operatively. What we did: Sixty-five cardiac surgery patients were given access to the app and completed system usability, satisfaction, and quality of life surveys before and after their cardiac surgery. What we found: Mobile health technology is feasible for peri-operative cardiac surgery patient education, including older adult patients. The majority of patients were satisfied with the app and would recommend using it over the use of printed materials.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/engagement-in-practice/congenital-heart-disease</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>Engagement in Practice - Congenital Heart Disease - Multistakeholder Recommendations for CHD Care Transitions</image:title>
      <image:caption>Article full title: Multistakeholder recommendations for supporting patients and families transitioning from paediatric to adult congenital heart disease care Study aims: Existing Congenital Heart Disease (CHD) transition programmes have not included patients, caregivers, and health care providers as partners in their development. This study aimed to develop recommendations for a CHD transition programme driven by lived and clinical experiences. What we did: We engaged adult and paediatric people living with CHD, their caregivers, and CHD health care providers as members of the research team. We also consulted members of these stakeholder groups through a series of 3 virtual workshops. What we found: Information, education, and support for self-management and knowledge are required for people living with CHD. Caregivers require information, education, and support to build capacity in people living with CHD and navigate their new role in their loved ones’ life. The health care team should provide this information and education. Peer support should be offered when people living with CHD are 15-22 years of age. This information, education, and support should be individualized, navigate limitations, build over time, have multimodal options, and be available virtually or in person.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/engagement-in-practice/prediabetes</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>Engagement in Practice - Prediabetes - MOVE IT: Self-Compassion and Physical Activity Experiences</image:title>
      <image:caption>Article full title: Experiences of people with prediabetes in a self-compassion and physical activity intervention: a qualitative study using participatory Theme Elicitation Study aims: To better understand how women with prediabetes experienced a program that combined physical activity support with self-compassion skills, such as learning to be less self-critical and more understanding toward themselves. What we did: We ran an 8-week online group program called MOVE IT for women with prediabetes. The program helped participants set physical activity goals while also learning skills to manage self-criticism, cope with setbacks, and treat themselves with more kindness. We listened to and reviewed conversations from the group sessions to understand participants’ experiences. A unique part of this study was that former program participants did not just take part in the research — they also worked alongside the research team to help analyze the group discussions and identify the most important ideas and themes. This helped ensure the findings reflected participants’ real experiences and perspectives. What we found: Participants described becoming more aware of the thoughts, emotions, and challenges that affected their physical activity. Over time, many shifted from being hard on themselves to responding with more patience and self-kindness when things did not go as planned. Participants also shared that self-compassion strategies and support from others in the group helped them stay motivated and continue being active. For many, these changes gradually became part of their everyday lives.</image:caption>
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  <url>
    <loc>https://www.patientengagementinresearch.ca/other-studies</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-06-04</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/other-studies/social-prescribing</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2026-06-04</lastmod>
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      <image:title>Other Studies - Social Prescribing - Core Outcomes for Social Prescribing</image:title>
      <image:caption>Article title: Identifying social prescribing core outcomes using a Delphi approach: findings and future directions Key concepts: Social prescribing: A social service that helps connect people with non-medical community services and supports — such as exercise programs, social groups, food supports, or housing resources — to improve health and wellbeing. Delphi study: A research method that gathers feedback from a group of people using multiple rounds of surveys to help build agreement on important topics or priorities. Study aims: To identify the most important outcomes that should be measured in future studies and evaluations of social prescribing, and to better understand which outcomes matter most to people involved in or affected by social prescribing. What we did: We conducted a two-round online Delphi study with people from across Canada with different experiences and perspectives related to social prescribing, including healthcare providers, researchers, community organizations, older adults, family members, and friends. In each round, participants reviewed and rated a list of possible outcomes that could be used to evaluate social prescribing programs. What we found: Participants identified seven outcomes that are especially important for use in studies and evaluations of social prescribing. These outcomes mainly focused on mental health, social connectedness, physical functioning, and overall wellbeing. Participants also highlighted the importance of considering factors such as equity, access to resources and services, and how care is delivered when studying and evaluating social prescribing programmes. The findings provide an important starting point for improving consistency in how social prescribing programmes are studied and evaluated in future research and practice</image:caption>
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      <image:title>Other Studies - Social Prescribing - Community Connectors’ Experiences in Social Prescribing</image:title>
      <image:caption>Article full title: Looking Back and Moving Forward: Exploring Community Connectors’ Experience With Implementing Social Prescribing Key concepts: Social prescribing is a service that helps connect people with non-medical community services and supports — such as exercise programs, social groups, food supports, or housing resources — to improve health and wellbeing. Community connectors (sometimes called link workers) help guide people to these services and supports based on their individual needs and goals. Study aims: To better understand how community connectors experience their role in social prescribing programmes, including what supports their work and what challenges they face in practice. What we did: We interviewed community connectors working within a social prescribing programme about their experiences in the role. Participants described how they connected people to community services and supports, how their role worked in everyday practice, and what helped or made their work more difficult. We then analyzed the interviews to identify common ideas and experiences across participants. What we found: Community connectors described playing an important role in helping people access community services and supports that could improve their health and wellbeing. Participants shared positive experiences, such as building trusting relationships and seeing meaningful improvements in people’s lives. However, they also described challenges, including unclear role expectations, heavy workloads, and broader system-level barriers that made the programme more difficult to implement consistently.</image:caption>
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  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/about</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2024-02-18</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/home</loc>
    <changefreq>daily</changefreq>
    <priority>1.0</priority>
    <lastmod>2024-02-26</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/annamchudyk</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2024-02-18</lastmod>
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      <image:title>Anna M. Chudyk - About Me!</image:title>
      <image:caption>I am an assistant professor in the College of Pharmacy, University of Manitoba. I am supported by a Patient-Oriented Research Awards - Transition to Leadership Stream award from the Canadian Institutes of Health Research, which supports emerging leaders in patient-oriented research. I apply participatory approaches to the design and conduct of research focused on patient and care partner-identified priorities and outcomes, and that engages patients, caregivers, and other end-users as active members of the research team. I also study the methods that underlie this work. I care deeply about the social aspects of clinical and health services research, but also have a background in biostatistics. Thus, I prefer to use mixed-methods approaches that are both grounded in people’s experiences and supported by hard data. I am always open to exploring collaborations and consulting opportunities that seek to integrate patient and care partner perspectives as drivers of the research, so don’t hesitate to contact me. — Anna M. Chudyk</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/contact</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2022-03-08</lastmod>
  </url>
  <url>
    <loc>https://www.patientengagementinresearch.ca/podcast</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-05-31</lastmod>
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      <image:title>Podcast</image:title>
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