https://www.patientengagementinresearch.ca/how-to-engage daily 0.75 2026-06-04 https://www.patientengagementinresearch.ca/engagement-in-practive daily 0.75 2026-06-04 https://www.patientengagementinresearch.ca/engagement-in-practive/healthcare-service-re-design monthly 0.5 2026-06-01 https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709578555723-ENO1YIOJ5PVFSVN2OQCF/image-asset.jpeg Engagement in Practice - Healthcare Service or Intervention Re-Design - Multistakeholder Recommendations for Supporting Patients and Families Transitioning From Paediatric to Adult Congenital Heart Disease Care Study aims: Existing Congenital Heart Disease (CHD) transition programmes have not included patients, caregivers, and health care providers as partners in their development. This study aimed to develop recommendations for a CHD transition programme driven by lived and clinical experiences. What we did: We engaged adult and paediatric people living with CHD, their caregivers, and CHD health care providers as members of the research team. We also consulted members of these stakeholder groups through a series of 3 virtual workshops. What we found: Information, education, and support for self-management and knowledge are required for people living with CHD. Caregivers require information, education, and support to build capacity in people living with CHD and navigate their new role in their loved ones’ life. The health care team should provide this information and education. Peer support should be offered when people living with CHD are 15-22 years of age. This information, education, and support should be individualized, navigate limitations, build over time, have multimodal options, and be available virtually or in person. https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709584955112-0SGANDD755Q1YA0EVK5M/image-asset.jpeg Engagement in Practice - Healthcare Service or Intervention Re-Design - Putting patient value first: Using a modified nominal group technique for the implementation of enhanced recovery after cardiac surgery recommendations Study aims: To explore, from a patient and caregiver perspective, the priority of implementing the Enhanced Recovery After Cardiac Surgery (ERAS-CS) guidelines to optimize the care of patients undergoing cardiac surgery. What we did: Five patients who had undergone cardiac surgery and two caregivers ranked ERAS-CS recommendations within 3 time points (pre-operative, intra-operative, and post-operative) and across 2 to 3 voting rounds. Final round rankings were used to determine relative priorities. What we found: Patient engagement tools, surgical site infection reduction, and postoperative systematic delirium screening were the top-ranked ERAS-CS recommendations in the pre-operative, intra-operative, and post-operative time points, respectively. Exploring patient and caregiver priorities may provide important insights to guide the healthcare team with developing and implementing clinical pathways. https://www.patientengagementinresearch.ca/engagement-in-practive/patient-centered-care monthly 0.5 2026-06-01 https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709590601478-6EU2AOLG2M1FQ18IFDWC/image-asset.jpeg Engagement in Practice - Patient Centred Care - Patient and caregiver preferences and prioritized outcomes for cardiac surgery: A scoping review and consultation workshop Study aims: to identify patient and caregiver preferences and prioritized outcomes related to peri-operative care in cardiac surgery and its lifelong impact. What we did: We conducted a scoping review of five electronic databases. We included 43 studies that investigated patient or caregiver preferences and prioritized outcomes. Findings were summarized using descriptive statistics and a thematic analysis. Ten patients and seven caregivers were involved in a consultation workshop to validate or add to the findings. What we found: Based on the collective preferences of 3772 patients and caregivers from the review and 17 from the consultation workshop, a total of 108 patient preferences, 32 caregiver preferences, and 19 prioritized outcomes were identified. Patient and caregiver preferences overlap with the current recommended strategies to reduce risk and improve recovery among cardiac surgery patients. https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709480435290-YJ1Y9UZJWJIZEIL5D6XB/image-asset.jpeg Engagement in Practice - Patient Centred Care - Barriers to Successful Discharge After Cardiac Surgery: A Focus Group Study and Cross-Sectional Survey Study aims: To investigate patient, caregiver, and health care provider perceptions of the discharge process after cardiac surgery. What we did: Sixteen patients and sixteen caregivers participated in four focus groups. The focus group discussions were used to develop surveys about values, barriers, and challenges relating to the discharge process. Seventy-eight patients, 34 caregivers, 53 nurses and/or other allied health professionals, and 8 surgeons completed the surveys. What we found: Four themes emerged from the focus groups (1) a lack of understanding about the discharge process and when it is appropriate, (2) issues relating to information provided to patients at discharge, (3) experiences with the health care system, and (4) the experiences of caregivers. According to the survey responses, the most important part of the discharge process for patients and caregivers was "knowing what to do in an emergency.” Patients and caregivers differed most from healthcare providers regarding their thoughts on informational barriers to discharge. Overall, patient and caregiver values should inform the post-cardiac surgery discharge to promote successful recovery. https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709588925825-AJI7EUCGFVKUW18H8IEE/image-asset.jpeg Engagement in Practice - Patient Centred Care - Expanding enhanced recovery protocols for cardiac surgery to include the patient voice: A scoping review protocol Study aim: To describe a protocol for a scoping review of cardiac patient and caregiver preferences and outcomes relevant to cardiac surgery enhanced recovery protocols. What we did: We describe a protocol for a scoping review of existing literature describing patient and caregiver preferences and outcomes as they relate to care received in the peri-operative period of cardiac surgery. The search for relevant articles will be conducted using electronic databases and other online sources. Two patient partners with lived experience as cardiac surgery patients will be involved as collaborators. Expected contributions: This review will identify strategies that can be integrated into enhanced recovery protocols for cardiac surgery which align with patient- and caregiver-defined values. https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709588177266-WWPIWK9N202LPJ3EQUKL/image-asset.jpeg Engagement in Practice - Patient Centred Care - Use of a mobile health application by adult non-congenital cardiac surgery patients: A feasibility study Study aims: To evaluate the feasibility (compliance, usability and user satisfaction) of a mobile health app for delivering Enhanced Recovery Protocols to cardiac surgery patients peri-operatively. What we did: Sixty-five cardiac surgery patients were given access to the app and completed system usability, satisfaction, and quality of life surveys before and after their cardiac surgery. What we found: Mobile health technology is feasible for peri-operative cardiac surgery patient education, including older adult patients. The majority of patients were satisfied with the app and would recommend using it over the use of printed materials. https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709589769920-4N4O1Y7TNND9QCHXPOPR/image-asset.jpeg Engagement in Practice - Patient Centred Care - Patient Engagement in the Design of a Mobile Health App That Supports Enhanced Recovery Protocols for Cardiac Surgery: Development Study Study aims: to describe a process for, and the impact of, patient engagement in the development of a mobile Health app that supports patient and caregiver involvement with enhanced recovery protocols during the peri-operative period of cardiac surgery. What we did: Ten cardiac surgery patients and their caregivers formed an advisory panel. Themes were generated from discussions with the advisory panel to describe (1) the key messages they provided (2) how key messages were incorporated into the app, and (3) feedback from the app developers. What we found: The advisory panel generated seven key messages about app design and 16 key messages about app content. This information was directly incorporated into the app. The advisory panel provided unique recommendations that the app developers had not previously considered. Patient engagement may facilitate the development of a detail-oriented and patient-centered mobile health app whose design and content are driven by the lived experiences of end users. https://www.patientengagementinresearch.ca/other-studies daily 0.75 2026-06-04 https://www.patientengagementinresearch.ca/other-studies/social-prescribing monthly 0.5 2026-06-01 https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/1709581977669-ZGMISJCTD7N0BDSTI9F1/image-asset.jpeg Other Studies - Social Prescribing - Older adults and social prescribing experience, outcomes, and processes: a meta-aggregation systematic review Study aims: To synthesize available evidence from qualitative methods (e.g. interviews or focus groups) on experience, outcomes, and processes for social prescribing and among adults. What we did: We conducted a systematic review using the Joanna Brigg's approach. We searched multiple online databases for peer-reviewed studies which included adults aged 60 years and older, and examined social prescribing experience, outcomes, or processes. What we found: Eight studies met our criteria and were included in the review. We created five synthesized findings related to (1) the approach of social prescribing; implementation factors such as (2) relationships, (3) behaviour change strategies, and (4) the environment; and (5) older adults’ perceived health and psychosocial outcomes. We provide an overview of people and processes involved with social prescribing, identified research and practice gaps, and possible next steps for implementing and evaluating social prescribing for older adults in primary care. https://www.patientengagementinresearch.ca/about daily 0.75 2024-02-18 https://www.patientengagementinresearch.ca/home daily 1.0 2024-02-26 https://www.patientengagementinresearch.ca/annamchudyk daily 0.75 2024-02-18 https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/2008a95b-7348-4c61-99e9-a8396434289c/Anna+Chudyk-9.jpg Anna M. Chudyk - About Me! I am an assistant professor in the College of Pharmacy, University of Manitoba. I am supported by a Patient-Oriented Research Awards - Transition to Leadership Stream award from the Canadian Institutes of Health Research, which supports emerging leaders in patient-oriented research. I apply participatory approaches to the design and conduct of research focused on patient and care partner-identified priorities and outcomes, and that engages patients, caregivers, and other end-users as active members of the research team. I also study the methods that underlie this work. I care deeply about the social aspects of clinical and health services research, but also have a background in biostatistics. Thus, I prefer to use mixed-methods approaches that are both grounded in people’s experiences and supported by hard data. I am always open to exploring collaborations and consulting opportunities that seek to integrate patient and care partner perspectives as drivers of the research, so don’t hesitate to contact me. — Anna M. Chudyk https://www.patientengagementinresearch.ca/contact daily 0.75 2022-03-08 https://www.patientengagementinresearch.ca/podcast daily 0.75 2026-05-31 https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/06abd25a-cf3d-49cf-9e1d-20a78217982f/image+%281%29.jpg Podcast https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/a4f53c4a-4115-4aea-b9f9-e09a91a7bb92/image+%282%29.jpg Podcast https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/7a2e28fe-9123-4750-96cb-4c84365aaa43/image+%283%29.jpg Podcast https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/0ebc7b7c-20f1-481b-bbfa-0245a496f8d7/image+%284%29.jpg Podcast https://images.squarespace-cdn.com/content/v1/62103d1c31b3c41f4ef2f077/93a97360-b881-4198-8e98-576371214a59/As+PER+Usual+Graphic.png